NNLM PNR All of Us Research Program Funding Opportunities – March 2019

Hello everyone and welcome to NNLM PNR All
of Us Research Program Funding Opportunities. My name is Michele Spatz and I’m the NNLM
All of Us Community Engagement Coordinator here at the National Network of Libraries
of Medicine, Pacific Northwest Region office. I’m excited to provide you with some information
about this funding opportunity available to our region. Please note that this funding webinar is specific
to the Pacific Northwest Region – which includes the states of Alaska, Idaho, Oregon,
Montana and Washington. If you live outside the Pacific Northwest,
please keep in mind that the All of Us funding for other regions may be different and it
is best to consult with your regional All of Us community engagement coordinator for
questions about their funding opportunities. With all that being said, let’s get started! Here’s our agenda for this webinar. First, I’ll share a bit of information about
the National Library of Medicine’s partnership with the All of Us Research Program
Then describe the role of the NNLM Community Engagement Network
Next, I’ll review the current funding opportunities for All of Us awards from the NNLM PNR and
what we are looking for with these awards And finally, I’ll share some examples of
projects that qualify for this funding. Hopefully this webinar will provide a better
understanding of the types of projects we are looking to fund and possibly spark some
ideas for you as well. Feel free to innovate and submit funding applications
that creatively address the criteria. I also want to let you know, that throughout
the webinar I will be using NNLM to refer to the National Network of Libraries of Medicine. I may also say PNR to refer to my regional
office of the Pacific Northwest Region which serves the states I mentioned earlier: Alaska,
Idaho, Oregon, Montana and Washington. I also wanted to let you know that our office
welcomes and encourages you to reach out with any questions you may have. You may also request a consultation with one
of our staff members if you need assistance with your funding application. This can be to talk about a potential project,
get advice on National Library of Medicine resources that could be integrated into your
project idea, and to receive any additional feedback or clarifications. We want potential applicants to connect with
us to discuss your ideas to make sure you are submitting a strong application. We are also here to answer any questions you
may have along the way. Contacting us via email is the best way to
connect with us. Just pop us an email with your specific question
and we’ll quickly have the right staff member respond or set up a time to talk with you. First, let’s start with an understanding
of the All of Us Research Program The All of Us Research Program is a Precision
Medicine initiative – part of an emerging approach for disease treatment and prevention
that takes into account individual variability in lifestyle, environment, and biological
makeup. It aims to build one of the largest, most
diverse collection of data of its kind for health research. It was launched just this past spring and
will be a 10 year program. The goal is to have one million or more diverse
volunteers nationwide who will sign up to share different types of information on their
lifestyle, biology, and environment over time. These data, stripped of obvious identifiers,
will be accessible to researchers, whose findings may lead to more tailored treatments and prevention
strategies for many different medical conditions. To learn more, I invite you to visit their
website which is joinallofus.org/nlm So that’s some background about the research
program behind the partnership. Now I’m going to talk about our partnership,
and how it impacts public libraries or other partner organizations. The National Library of Medicine and the NIH
All of Us Research Program have teamed up to build the NNLM All of Us Community Engagement
Network. The Community Engagement Network or CEN supports
our mission to improve the public’s access to health information. Our focus is to partner with public libraries,
as well as organizations or other types of libraries who work collaboratively with public
libraries, to increase the public’s access to health resources and enable people to make
informed decisions about their health. Our focus is on health literacy, access to
health information, and improving the public’s understanding of health topics related to
All of Us. So as I mentioned previously, precision medicine
looks at differences in lifestyle, environment and biology and how these influence health. The Community Engagement Network seeks to
help with the public’s understanding of these aspects as a foundation of supporting
health literacy. So we are looking at ways of addressing how
and where do people find information about their lifestyle, environment, biology or genetics
along with the health implications of these factors. We are also looking at how best to support
access to health information resources. You will see many of these themes pop-up as
All of Us-related topics. And again our focus is to partner with public
libraries to increase public access to health resources and enable people to make informed
decisions about their health. We also want to partner with organizations
working with and benefitting our public libraries. I want to clearly state an important point:
public library staff and other NNLM Network members will not be asked to recruit for or
represent the All of US Research Program in any way. The focus is on supporting health literacy
through education, outreach and information access. More specifically, these are the primary goals
of our partnership with the All of Us Research Program. A major aim is to increase the capacity of
library staff to improve health literacy by building the consumer health skills of librarians
and library staff members; and also supporting libraries in their community health programming,
outreach and health information resources and services. Another goal is to highlight libraries as
a technology resource for trusted health information and also participant engagement – especially
for those in underserved communities affected by the digital divide. So you can see, there is also a focus on digital
literacy with this partnership. Lastly, a goal is to provide libraries and
member organizations with information about the All of Us Research Program to share with
their local communities. I want to reiterate that we are not asking
our library or member organization partners to recruit people for the AoU Research Program,
but rather make information available to help increase the public’s awareness of this
research program. Now let’s look specifically at the PNR’s
two All of Us Research Program Funding Opportunities: the All of Us Community Engagement and the
All of Us Health Literacy Outreach Award Funding Opportunities. Again, the focus of projects proposed under
these awards are on supporting health literacy for the public through outreach programming,
activities, services, training or education and offering general awareness of the All
of Us Research Program and All of Us related topics. With the major awards for up to $100,00 called
NNLM PNR All of Us Community Engagement awards, we want public library projects that address
the health literacy needs of your community through offering programs, services, and/or
training along with a general awareness of the All of Us Research Program. The amount of money provided by the awards
is substantial and intended to support major costs you need, such as personnel—to implement
a new service in your library or community. Sustainability should be considered– how
you will carry out what has been started after the PNR funding is no longer available. However, there is a possibility of continued
PNR funding for another year—through April 2021, if the first year of your plans –through
April 2020 –is successful. The Community Engagement awards are also open
to non-public libraries, for example organizations, as long as they collaborate with a public
library on a project, conduct a project that benefits a public library or public library
staff, or create a program that could be performed and replicated in a public library and that
supports public librarians in providing health information. So there has to be a strong public library
benefit from a non-public library application submission. Preference will be given to public libraries
but we encourage partnerships between health sciences libraries, hospital, community- and
faith-based organizations, volunteer organizations, and of course, other public entities who may
want to work with public libraries. The Health Literacy Outreach Award has a similar
purpose but with less funding support, so we would expect smaller scale projects. The Health Literacy Outreach proposal could
propose a program to pilot a new health information service, or a series of events and/or trainings
in the community to increase health literacy. Of course, the proposal should included plans
for general awareness of the All of Us Research Program. These Health Literacy Outreach awards are
also open to organizations other than public libraries, but a public library must be included
in the project plan. So, again, preference will be given to public
libraries but we encourage partnerships between health sciences libraries, hospital, community-
and faith-based organizations, volunteer organizations, and of course, other public entities who may
want to work with public libraries. Here are some of the specifics about timelines
and deadlines these two types of awards. The funding period for both awards is Wednesday,
May 1, 2019 to Thursday, April 30, 2020. The awards available are:
The All of Us Community Engagement Awards for up to $100,000 each; and
The All of Us Health Literacy Outreach: Awards for up to $19,000 each
The Application Deadline is Wednesday, May 1, 2019 at 3:00pm Pacific Time
If you do plan to apply, please send a letter of intent by April 3, 2019 to [email protected]
including a brief description of your proposal and the type of award you will apply for. Similar to other funding awards available
through PNR, All of Us Community Engagement or All of Us Health Literacy Outreach proposals
should also show how National Library of Medicine and/or other health information resources
will be integrated into the proposed project or program. For example, just running a nutrition program
isn’t enough to make a project an NNLM project, but showing how you integrate nutrition health
information from MedlinePlus, for example, is what makes it an NNLM applicable project. Show how the finding and understanding of
health information is supported by the health and wellness project that you are proposing. Under these awards you will provide general
NIH All of Us Research Program awareness, and this may look different for different
projects. Some examples of the activities for All of
Us promotion that you could propose include: For example, library staff attending an in-person
training or a webinar about the National Library of Medicine and All of Us Research Program
partnership; Another is hosting the All of Us Journey – the
traveling education exhibit and enrollment center – if it comes to your area. Or hosting a table at an event organized by
the All of Us Journey when it’s in your community
Another possibility is writing an article for the Community Engagement Network’s electronic
newsletter sharing your project and its impact Again, you will not be asked to represent
the All of Us Research Program in any way or recruit for it, just make people aware
of it. This awareness piece is something we can help
you with by sharing NNLM’s All of Us informational materials. We will also provide information about new
All of Us awareness opportunities that may arise throughout your funding period. Our goal is for the All of Us awareness aspect
to serve as an enhancement to our funded projects, so we will work with you to include this aspect
of your project in a way that works best for your organization and your community. So now I’m going to talk about some examples
of applicable projects under this award. Again you will hear a focus on All of Us topics
like learning more about lifestyle, environment, and biology or genetics and learning more
about how these influence our health. For example lifestyle. These are projects that respond to the lifestyle
information needs of your community and provide lifestyle information and programming that
may benefit the people you serve. Projects can focus on nutrition, physical
activity, or other lifestyle health topics that are of interest to your community or
respond to an identified community need. There are a lot of options here. You can also integrate a National Library
of Medicine resource like MedlinePlus into the project. For example Nashville, Tennessee’s Public
Library’s “Be Well at NPL” is a free wellness program offered throughout its branch
libraries. The program provides a variety of participatory
wellness approaches such as fall prevention, meditation, and so forth and even offers a
“Live Your Best Life” program designed for teens on healthy eating, stress reduction
and living an active lifestyle. The program also connects individuals to trusted
health resources found online, in the library stacks, and in the community. Again one of the focus areas of precision
medicine is to look at various aspects of a person’s life that may affect health – such
as genetics. Libraries and organizations can create programs
for people to understand their own medical history as well as teach them how to explore
their family health history. Libraries can connect health information awareness
and education with genealogy programs and perhaps incorporate Genetics Home Reference
or a resource like My Family Health Portrait, which allows people to make a visual family
health history tree. In addition, as a support for library programming,
the NNLM Reading Club produces themed book club kits. The supporting material for hosting a book
club discussion along with corresponding health information is available online. One of the available themes is Family Health
History which may be incorporated into a Community Outreach project focusing on genetics and
precision medicine. Now let’s talk about the Environment
You can create a project to help people better understand how the place where you live also
affects your health and about how local and regional environmental factors affect individual
or community health. A popular type of program idea that can be
replicated in libraries is called citizen science. A citizen scientist is an individual who voluntarily
contributes their time, effort, and resources to scientific research in collaboration with
professional scientists. These individuals don’t necessarily have
a formal science background, they just share their time and contribute information or data. Many of these citizen science projects involve
learning about and sharing information about local environmental factors. NNLM has a lot of citizen science resources
to support you. You can include health information from ToxTown,
the National Library of Medicine’s portal to environmental health information for the
public. And there are websites, like Scistarter and
National Geographic, that have research project ideas and lesson plans that libraries can
readily use or adapt for a program. Projects can incorporate training for staff
members to build skills and knowledge of health resources so staff are better able to provide
health information to the public. When planning your project timeline, be sure
to include time for staff training if this is part of your overall project. NNLM can provide staff training or you may
wish to incorporate other qualified professionals to train your staff. Projects may also involve collaborations with
community partners to plan a local or regional health literacy symposia or professional development
workshop focused on health information skills or resources. An example is working with your state library
association to plan a preconference at their annual meeting offering the NNLM CE Course
Stand Up for Health, a class on providing consumer health information and outreach services
created with and for public librarians. Another project idea is to collaborate with
a local hospital or academic health sciences library to offer a community workshop on health
literacy featuring NLM resources for staff from area community service agencies and organizations. Is access to technology something that is
lacking in your community? Or perhaps the skills for people to navigate
online health information resources needs support. If that’s true, then you can think about
including technology into an award. Now you can’t purchase a computer lab “just
because.” You must show how it will increase the public’s
digital literacy skills as well as enhance people’s ability to find, evaluate, and
access health information. Examples are creating tablets for check-out
that are loaded with vetted, trusted health websites or organizing and offering specific
digital literacy classes teaching people how to find trusted health information online. Other types of libraries or organizations
can apply for funding, too, if the proposed project involves or supports a public library. An example is the Spokane Homeless Coalition,
which is made up of people from non-profits, government agencies, churches, schools and
more. A librarian from the Spokane County Library
District participated in an event they sponsor called Spokane Homeless Connect. It connects people to services and resources
to improve their living conditions and their health by bringing social service agencies
and health providers together to offer services in a one-stop-shopping-type venue. The library participated by offering amnesty
for large library fines and sharing a limited use library card for people with no address
so they could borrow library materials and use the library internet. The librarian then turned around and planned
her own Spokane Valley Connect event in another location within their County – a project
which would qualify for NNLM funding if it included promoting NLM health information
resources along with All of Us awareness. Another example is Libraries Without Borders,
an organization that works in partnership with public libraries and community-based
organizations to design and implement the Wash & Learn Initiative. This initiative brings educational programming
and health information to laundromats, as a way to perform outreach and meet people
where they are who may not have otherwise come to a traditional library space. Other creative ideas addressing health information
education and health literacy and incorporating All of Us are also encouraged. For example, your project might be centered
around conducting a series of promotional activities, including health fairs, exhibits
and demonstrations to increase awareness of National Library of Medicine information resources
and general awareness of the All of Us Research Program. A funded project might include a monthly National
Health Observances book club program using the NNLM resources and tools. This project might include a local expert
who provides a presentation on the health topic or serves as the topic’s book club
discussion leader. Or, you may wish to support the continuation
of a health program already in existence by expanding its reach or its scope. These are just a few additional ideas. But please don’t be limited by the examples
presented here – plan a project that fits for your library and your community. At the same time, remember you don’t need
to do everything, think about the health topics or health issues that are most pertinent to
the communities that you work with, pick one, and start from there. Most importantly, we are open to hearing your
ideas, so please do reach out to us. So here are things you can budget for:
Materials needed for your project Technology connected to the project
Personnel – the staff time required to carry out your project
Printing and marketing, if needed And here are the things you can’t budget
for Food is not allowed such as serving a meal
or snack as participants watch a program or presentation;
However, you can budget for food items as a supply to teach participants how to cook
healthy meals. So this is a distinction between the food
being a necessary ingredient to the project and just being used to entice people to attend. If you are considering including food as a
supply, please talk with our Associate Director, Cathy Burroughs. You may not budget for Freebies – items
also known as swag or giveaway items or tchotchkes. And furniture is not allowed. Some general things to remember under this
award type are: 1. The focus is supporting health literacy and
health information access to the public. 2. You need to integrate a National Library of
Medicine health information resource into your project. MedlinePlus is a great starting point but
please feel free to reach out if you need guidance on something more specific to your
project. 3. Include All of Us Research Program general
awareness knowing its inclusion is meant to add to the impact of the project. Again, we’ll help you if you get stuck on
this aspect. This concludes our program on Applying for
All of Us Funding – Community Engagement for Public Libraries. Remember to reach out and get in touch with
us as you think through and create your project proposal. We are truly here to help. You can best reach our staff by emailing us
at: [email protected] Thank you! And we do hope to hear from you!

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